Patient and Public Involvement & Engagement
At the Centre for Brain and Mind, NIMHANS (CBM-NIMHANS), Public and Patient Involvement and Engagement (PPIE) shapes how we think about research, communication, and public dialogue on mental illnesses. Our work is informed by the understanding that knowledge in this field is produced not only through laboratories, clinics, and publications, but also through lived experience, community interaction, and everyday encounters with care and stigma.
What is PPIE?
Patient and public involvement and engagement is a research practice where people with lived experience (PwLE) of health conditions (patients), their caregivers, members of the public and communities work together with scientists at every stage of research. Rather than research being done about people, it is done with and for them.
Within the Indian context of mental illness - where silence, hierarchy, and unequal access continue to influence who is heard - PPIE offers ways to engage more inclusively.
Who can be involved?
You don’t need any research background to get involved, and it’s not just for people with a mental health condition. Caregivers, family members, and others in the community all have valuable perspectives to share.
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Persons with lived experience (PwLE) of a mental illness
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Family members of PwLE
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Caregivers of PwLE
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People from communities & organisations that support PwLE
Who does PPIE benefit & how?
Involving patients and the public in research has multiple benefits for both researchers and those involved -
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Better quality of research
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More relevant research goals
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Brings real-world perspective to theoretical problems
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Increases accessibility to researchers and their work
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Provides accountability to the public
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If you’re a member of the public interested in PPIE
If you are a patient, caregiver, or member of the public who is interested in joining the CBM-NIMHANS PPIE community, fill out our registration form here.
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If you’re a researcher interested in PPIE
To learn more about our PPIE work or to explore potential collaborations, please email us at cbm.nimhans@gmail.com
